The Irish Centre for Autism and Neurodevelopment Research (ICAN) at NUI Galway is inviting the public to meet and engage in planning the future direction of the provision of services for those with autism in Ireland.
ICAN, in partnership with Trinity College Dublin and Autism Speaks, aim to develop an Irish Autism Registry and Biobank or specimen repository.
Autism is a lifelong disorder and has profound effects on an individual’s social, emotional and cognitive development, and has implications for the family, state services and society at large.
A Stakeholder Consultation Process is underway to take account of the needs and perspectives of individuals with autism and other related neurodevelopmental disorders and the perspectives of their families.
As part of the consultation process there will be regional public consultation meetings held around the country, which all are welcome to attend. NUI Galway will host a meeting on Tuesday 28 January at the Fottrell Theatre, Arts Millennium Building at 7pm. For additional information on public meetings visit www.iarb.ie
“The need for a registry of Autism Spectrum Disorder (ASD) and related neurodevelopmental disorders will address critical questions concerning ASD and related conditions in Ireland, there is an urgent need for a comprehensive registry,” said Dr Geraldine Leader, Irish Centre for Autism and Neurodevelopment Research at NUI Galway.
“This registry will serve as a national resource for research in the areas of health, education and social services and to inform policy development.”
Clinical registries will gather clinical information and other data on patients to inform the development of clinical practice, services and future research.